Wednesday, January 20, 2010

Health Blog - Getting started

I had a good friend ask me if I was going to blog my experience with breast cancer. I thought, "why would anyone be interested in that?!" But I guess in this age of technology, maybe some friends and family would find it helpful to keep in touch with me as I work my way through treatment. I've also noticed that as information is passed from person to person, misinformation happens.

So here is what happened up to this point:

After finding a small growth during a routine physical, my doctor told me I should probably have it checked out with a diagnostic mammogram. I went the following week. The radiologist also did an ultrasound, and had this comment, "This doesn't look good. We should probably set you up for an MRI, followed by a biopsy." So I had that to think about over the Thanksgiving weekend.

After the MRI and the biopsy, I was told it would be 3 days before they would have the results. On the evening of the second day, Dec. 3rd, my doctor called. "I just got the results of your biopsy" he said. "You have infiltrating ductal carcinoma." I didn't hear much else of what he said, other than it was in the early stages and that I should meet with surgeon to discuss my options.

After meeting with a surgeon in Bozeman, I decided it would be a good idea to travel to the Seattle area and meet with a surgical specialist. After the meeting and much discussion with my husband, I decided to have a lumpectomy and scheduled it for Jan. 4th.

The surgery went well and was performed in an outpatient facility, so I didn't have to spend any time in the hospital. The surgeon told me she took out 7 lymph nodes, which is a bit unusual, since they normally take 2-3, but apparently I have a very healthy lymph system. Just as I was feeling good that the surgery was behind me, the surgeon called with results of the lymph node pathology report. They had found cancer in one of the seven lymph nodes. This was a blow to my mental state, because it meant chemotherapy would be part of the treatment.

It also meant I had to have a CT scan and bone scan to make sure the cancer hadn't spread into other parts of my body. Those fortunately came out clean, plus further tests on the lymph nodes all came out negative.

I met with the oncologist to discuss the results of all the tests. She laid out a recommended course of treatment, starting with 3-4 mos. of chemotherapy (infusions every three weeks), followed by 7 weeks of radiation and 5 years of hormonal therapy. I would lose my hair after the first infusion. This information took several days (and a lot of emotional distress) for my mind to process. I also had to decide if I wanted to have my treatment in Bellevue, or back home in Bozeman. Despite having family in the Seattle area, and my best friend, I thought I would be happier overall in Bozeman.

So that leads us to today. I will be driving back to Bozeman at the end of the month, and will meet with the oncologist there. It will be a tough road ahead, but I think I'm finally up to it.

Lou Ann



17 comments:

  1. I like it too, Lou! And I wish you only the best, and easiest road ahead.

    Patsy

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  2. I'm so sorry to hear about the cancer. I have been talking to some of the oncologists at the hospital I work at and they all agreed that your treatment plan is the best plan. You will be in our prayers.

    -Allie

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  3. I have a friend with a rare type of sarcoma who has a blog and it is great way to check in with her and encourage her. I am sorry I will miss you on Sunday but I am scheduled to work all day, and the weekend workdays are usually very long. Take care and thank goodness it sounds like all the bad stuff is gone you just have to do all the no fun treatments to catch any straggler cells that might be floating around. Take care and have a beautiful wintry drive home to Bozeman.
    Kathy (member of the Dunkaroo's or is it the Dunkadoo's?)

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  4. This is a great way to keep us all in touch with you. Everyone cares and wants to know what's up, but we don't want to be bugging you. This lets you keep us in the loop on your terms. Thanks for doing it!!!

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  5. Friends are here for you ANYTIME!!!!
    Lei

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  6. You are an amzingly strong woman. I send you strength and power! We all support you in your journey toward good health. Sending hugs. Love the blog!

    Love, Renee

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  7. So love the blog. Thank you for giving us this platform to share your experiences. Hugs and friendship... Teri

    "Friendship runs dancing through the world bringing to all of us the summons to wake and sing its praises." Epicurus (341-270 BC)

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  8. Lou Ann, thanks so much for doing this blog. We all care about you and want to keep up with your treatment without bothering you. So sorry I can't make Sunday, but we have had plans to camp on the Olympic Peninsula for a long time. I left something for you with Christy. Thinking of you and wishing you a return to good health,
    Mary

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  9. Thank you for bringing me up-to-date with all you and your husband and family have been dealing with the last several weeks. Sounds like you're ready to come home to Bozeman and we will certainly help you anyway we can. I have several friends all of whom have had chemo here and they said the protocols for the chemo are quite universal so that helps. One day at a time--that' how we will get through what's ahead. I am with you and so are all the Monday BWAGs! Mary

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  10. LouAnn,
    So good to see you and be able to give you a hug. I have such strong, positive thoughts and prayers for you. You are stronger than you know. You will do fine. Keep this going. It's wonderful. I will check it often...and send emails and cards. You're in my thoughts. hugs, Rosie

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  11. Hi LouAnn!

    I also think the blog is a great idea. I wish I would have thought about it when I was sick. It cuts down on having to answer the same questions numerous times and like you said, it also keeps the story straight. I can relate about the losing the hair the thing, having gone through it twice. It is a bummer, but it will grow back. I even got some wave for awhile! We will be praying for you!
    Love,
    Heather

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  12. HI Lou Ann,

    I'm so glad you are keeping this blog. Everyone else has said everything so well, I will just add that in my heart, I am pulling for you.
    xoxoxoxoxo Megan

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  13. Lou Ann; The blog is such a good idea to let friends know what you are going through and to give information to others who are going through the situation. I'm predjudiced as your mother but I know you are strong enough to go through this temporary set back with your viking and pioneer genes. Love and hugs, Mom

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  14. Dear Lou Ann
    I really enjoyed having you here in the Northwest for a while. We realize that you have to head back to Bozeman for your treatment. At the end you are going to be fine, but in the meantime some not so pleasant treatment will invade your privacy.
    You are in our prayers every night, and we will follow your progress as you worked your way through this problem. We plan to come to Bozeman to visit, when you get a break in your treatment schedule. Have a safe trip back to Bozeman.
    Love and hugs from
    Dad

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  15. Hi Lou Ann-
    I just heard about what you are going through. I just wanted you to know that my healing vibes are mingling with all the other positive ones coming your way.

    Angie

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